“My Fabulous Five”

– by Fiona Mylchreest

Fiona is the mother of five children – all of whom were born prematurely. Here, she talks about what this means for their family and the frustration of not knowing why.

I have five fabulous children. That’s the happiness. All five were born prematurely, which sounds crazy, I know. But the thing is, we never knew why. I wasn’t kite-surfing or living on cabbage soup. There was no obvious reason, no drug to take, no behaviour to change. My middle son managed to survive inside me when I had appendicitis, but decided to arrive on Hogmanay while I was watching Midsummer Murders and eating a mince pie. He was 33 weeks. It makes no sense. We need to know why babies are born early to stop it happening.

I met some parents whose babies did not survive. And many babies who do make it suffer disabilities, some very severe. Here in London mothers and babies are already relatively safe, but in more rural areas and in less developed countries, childbirth is dangerous.

“Some tiny premmies grow up into big healthy successful adults. Many do not.”

It’s true that some tiny premmies grow up into big healthy successful adults. Many do not. Some die and many have lifelong problems associated with prematurity. My five between them have had, and in some cases still have, autism, cerebral palsy, food allergies even to breast milk, low immunity, chronic lung disease, dodgy eyes, teeth with no enamel, epilepsy.

Some of these must be avoidable.

Already there is progress in the use of steroids to develop the lungs of babies threatening to be born early and some promising research about lowering the incidence and severity of cerebral palsy.

I cannot imagine a different fabulous five. But I can imagine easier lives and futures with less uncertainty. Their prematurity, in two cases their fight to live more than the first few hours of their lives, has made them an extraordinarily resilient bunch. But still, autism makes the world a very frightening place. Allergies make socialising complicated. Epilepsy is life-threatening, every time, and terrifying to watch. Cerebral palsy is a lifetime of trying to train muscles which don’t quite receive messages from the brain, muscles to walk and talk, even sometimes muscles to beat your heart. There are much worse things in life than doing your teenager’s buttons or putting on splints, but it’s still heart-breaking.

The scientists are Borne are researching causes of premature labour in all its mysteries and complexities. That is the hope. There is so much to discover to make mothers and babies safer.

I feel sadness for others born too soon to live. I hope that Borne will work out how to keep the next generation of would-be prems happily inside their mothers. And I hope that those babies that are born prematurely can receive expert care to allow them to live full and happy lives.

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